Dr. Greene's HouseCalls  
   A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease.
   http://www.drgreene.com/html/21614.html

The UDGD Spot  
   Resources and information for families of children with genetic disabilities or syndromes that are still awaiting a diagnosis.
   http://www.camp-a-roo.com/UDGD/

Primary Ciliary Dyskinesia  
   Information on a rare congenital disease.
   http://www.p-c-d.org/en/

Genetic and Rare Conditions  
   Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.
   http://www.kumc.edu/gec/support/

XLH Network  
   Patient support group for XLH, a genetic condition also known as X-Linked Hypophosphatemia, X-Linked Hypophosphatemic Rickets, Familial Hypophosphatemia, Vitamin D-Resistant Rickets.
   http://www.xlhnetwork.org

Genetic Disorders: The Links to Diet  
   Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.
   http://www.ctds.info/genetic_disorders.html

Washington University in St Louis  
   Family resource for individuals with Papillon Lefevre, Haim-Munk Syndrome and Prepubertal Periodontis. Interested families may participate in a registry dedicated to learning about the natural history of these three conditions.
   http://www.siteman.wustl.edu/physician/clinical_trials/non_therapeutic_1736_detail.shtml

Your Genes, Your Health  
   The DNA Learning Center's multimedia guide to genetic disorders. Complete in depth articles about each disease listed.
   http://www.ygyh.org

Blepharophimosis Ptosis Epicanthus Inversus Syndrome  
   The BPEI (BPES) Family Network encourages people to get in touch with each other, share information and ask questions. Explanation of this rare eye disorder.
   http://freespace.virgin.net/andy.bowles/

IMMD Institute of Medical Molecular Diagnostics Ltd.  
   The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood.
   http://www.immd.de/

The Center For Jewish Genetics Disorders  
   A critical effort to provide public and professional education for many of the identified Jewish genetic disorders. Find info on screening and counseling, advocacy, events and community resources.
   http://www.jewishgeneticscenter.org/

A3243G.com  
   Information about a gene defect which causes a variety of diseases. Find a discussion forum and an newsletter.
   http://www.a3243g.com/home.asp