Prader-Willi Syndrome (7)

See Also:
Regular Links:

http://www.pwsnotes.org/
PWS Notes Open in a new browser window
   Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
   http://www.pwsnotes.org/
http://www.prader-willi.org
Prader-Willi Alliance of New York Open in a new browser window
   Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
   http://www.prader-willi.org
http://www.pwsausa.org/
Prader-Willi Syndrome Association (USA) Open in a new browser window
   Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult)
   http://www.pwsausa.org/
http://www.fpwr.org/
The Foundation for Prader-Willi Research Open in a new browser window
   A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
   http://www.fpwr.org/
http://www.pwsausa.org/nj/
The New Jersey Chapter of the Prader-Willi Syndrome Association Open in a new browser window
   Includes news, important dates, fund raising, maps and links.
   http://www.pwsausa.org/nj/
http://www.pwsa-uk.demon.co.uk/
The Prader-Willi Syndrome Association (UK) Open in a new browser window
   Information and resources about this chromosomal disorder.
   http://www.pwsa-uk.demon.co.uk/
http://info.med.yale.edu/chldstdy/wspws
Williams Syndrome and Prader-Willi Syndrome Open in a new browser window
   Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
   http://info.med.yale.edu/chldstdy/wspws

Last Updated: 2007-08-07 19:57:18