Ben's Dream
   Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
   http://www.bensdream.org

Bennett Children's Foundation
   Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
   http://www.claritystudio.com/helpachild/

Children's Medical Research Foundation
   Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
   http://www.curekirby.org/

Frankiepants
   Personal site about a child with this disorder. Provides details about the condition.
   http://www.frankiepants.com

MPS III
   Information, including the causes, different forms, the inheritance and how the disorder progresses.
   http://www.mpssociety.org/content/4039/MPS_III/

Special Child: Disorder Zone Archives - Sanfilippo Syndrome
   Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
   http://www.specialchild.com/archives/dz-034.html

The Sanfilippo Children's Research Foundation
   Canadian based charitable group founded by the parents of Elisa Linton.
   http://www.alifeforelisa.org/