Smith-Lemli-Opitz/RSH Foundation 
The Smith-Lemli-Opitz/RSH Foundation was created in 1988 to give a group of 37 families with SLO/RSH children a network to exchange experiences and information about SLO/RSH. Since then, the group has grown to more than 200 families in the United States a
http://www.smithlemliopitz.org