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ABC HOME: Top: Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Ehlers-Danlos_Syndrome:

Ehlers-Danlos Syndrome (33)

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http://www.ednf.org/
Ehlers-Danlos National Foundation Open in a new browser windowEditor's Pick
   American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.
   http://www.ednf.org/
http://www.arthritis.org/conditions/diseasecenter/eds.asp
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome Open in a new browser windowEditor's Pick
   While EDS and Arthritis are two separate diseases, there are many characteristics in common. Additionally, EDS patients are at risk of developing OA. In addition to EDS information, site provides valuable pain and life management resources for patients.
   http://www.arthritis.org/conditions/diseasecenter/eds.asp

Web Sites In this Category:

Ehlers-Danlos Hope Open in a new browser window  
   A Syrian patient gives a personal plea for better medical support and research.
   http://ehler.8m.com
Ehlers-Danlos Syndrome Support Group Open in a new browser window  
   This site offers extensive information for patients and doctors, plus links.
   http://www.ehlers-danlos.org
Ehlers Danlos Foundation of New Zealand Open in a new browser window  
   Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
   http://www.edfnz.org.nz
New York / New Jersey Ehlers-Danlos and Hypermobility Open in a new browser window  
   Offers a support, message and discussion center for NY/NJ ehlers-danlos patients.
   http://disc.server.com/Indices/163893.html
Ehlers-Danlos Syndrome Information Open in a new browser window  
   A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
   http://www.orthop.washington.edu/arthritis/types/ehlersdanlos/01
EDS Today Open in a new browser window  
   The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
   http://www.edstoday.org/
NORD: Ehlers-Danlos Syndrome Open in a new browser window  
   Information about EDS from the National Organization for Rare Disorders.
   http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ehlers%20Danlos%20Syndrome
Ehlers-Danlos Syndrome, Philadelphia Chapter Open in a new browser window  
   Local Philadelphia, PA support for EDS and connective tissue disorders, also offers a Service Guide for Invisible/Hidden Disabilities.
   http://hometown.aol.com/daddio5600/
American Massage Therapy Association - The Hypermobile Client/Therapist Open in a new browser window  
   Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
   http://www.amtamassage.org/journal/olcott2.html
The Hypermobility Syndrome Association Open in a new browser window  
   HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, message boards, and much more.
   http://www.hypermobility.org/
The Canadian Ehlers-Danlos Association Open in a new browser window  
   Working together to provide assistance, support and resources for people living with this rare genetic disorder.
   http://www.ehlersdanlos.ca/
EDS Living - a Journal Open in a new browser window  
   Learn what it's like to live with EDS for this woman and her children by following her online journal.
   http://www.livejournal.com/users/edsliving/
Electronic Textbook of Hand Surgery Open in a new browser window  
   Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
   http://www.eatonhand.com
HealthWise: Ehlers Danlos Syndrome Open in a new browser window  
   Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
   http://hw.healthdialog.com/kbase/nord/nord240.htm
Hypermobility & Fibromyalgia Support Site Open in a new browser window  
   Offers information & support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
   http://anaiis.tripod.com/hmedfm/index.html
Hypermobility Forum Open in a new browser window  
   This is a moderated discussion board for Hypermobility Syndrome, Marfan, and Ehlers-Danlos. Includes personal experiences, traditional and alternative treatment, and pain management tips from fellow patients.
   http://www.marge.com/hypermobility/
Arthritis Insight-EDS Tips for Surgery Open in a new browser window  
   If you or a family member with EDS needs surgery, read this and share it with your doctor.
   http://arthritisinsight.com/medical/surgery/eds.html
Coalition for Heritable Disorders of Connective Tissue Open in a new browser window  
   Research organization for genetic connective tissue disorders.
   http://www.chdct.org
Department of Pathology Open in a new browser window  
   Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
   http://www.pathology.washington.edu/clinical/collagen/guidelines/ehlersdanlos.php
Ehlers-Danlos Syndrome Linked to Orthostatic Intolerance Open in a new browser window  
   Explores connection between EDS and low blood pressure. [PDF]
   http://www.potsplace.com/images/newsletter2.pdf
Ehlers-Danlos Syndrome Medical Information Open in a new browser window  
   Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, pregnancy considerations, and more.
   http://www.medicinenet.com/ehlers-danlos_syndrome/index.htm
Diagnose-Me: Treatments: Prolotherapy Open in a new browser window  
   Some EDS patients have obtained excellent results with prolotherapy treatments.
   http://www.diagnose-me.com/treat/T85233.html
Hypermobility Portal Open in a new browser window  
   Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
   http://hypermobility.objectis.net/
Oral Manifestations of Ehlers-Danlos Syndrome Open in a new browser window  
   EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
   http://www.cda-adc.ca/jcda/vol-67/issue-6/330.html
Wheeless Textbook of Orthopaedics Open in a new browser window  
   Technical information on joints, how they should work, and treatments for when they do not.
   http://www.wheelessonline.com/
Sandy Simmons' Connective Tissue Disorder Site Open in a new browser window  
   Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
   http://www.ctds.info/
eMedicine - Ehlers-Danlos Syndrome Open in a new browser window  
   Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
   http://www.emedicine.com/derm/topic696.htm
"China Doll" Syndrome Open in a new browser window  
   Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
   http://moondancer.150m.com/ehlers.html
Ehlers-Danlos National Foundation - Michiana Branch Open in a new browser window  
   Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
   http://smackdabdesign.com/mednf/
Voluntary Recall of Vioxx Open in a new browser window  
   Press release about the recall of Vioxx, a drug commonly used to treat EDS-related arthritis. If you have been taking this medication please contact your doctor immediately for instructions.
   http://www.vioxx.com/rofecoxib/vioxx/index.jsp
The Swedish Ehlers-Danlos Syndrome National Association Open in a new browser window  
   The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
   http://www.ehlers-danlos.se/indexEng.html

Last Updated: 2005-01-29 16:53:20


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