University College London: The Timing of Elective Aortic Root Replacement in the Marfan Syndrome  
   Includes a survey for study and links to useful sites.
   http://www.ucl.ac.uk/~ucahywc/

Marfan Association UK  
   The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
   http://www.marfan.org.uk

National Marfan Foundation  
   Providing accurate and timely information about the disorder to patients, family members and physicians.
   http://www.marfan.org/

Marfan-List  
   Information about an e-mail mailing list. Also includes links to other online support groups.
   http://www.marfan-list.org

Jeanette Navia's Marfan Life Website  
   Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.
   http://www.marfanlife.org

Canadian Marfan Association  
   Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
   http://www.marfan.ca/

Life and Issues of Marfan's Syndrome  
   Personal site by which describes the pathology and gives a bit of advice.
   http://www.io.com/~cortese/marfan/

Slovak Marfan Association  
   The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
   http://members.fortunecity.com/marfan

American Heart Association - Marfan's Syndrome  
   Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
   http://www.americanheart.org/presenter.jhtml?identifier=4672

International Federation of Marfan Syndrome Organizations  
   A global information center providing links to Organizations around the world.
   http://www.marfanworld.org/

eCureMe.com -- Marfan's Syndrome  
   Description, symptoms, diagnoses, treatment and other information with a couple of similar disorders for comparison.
   http://www.ecureme.com/emyhealth/data/Marfan's_Syndrome.asp

Univ. of Washington - Marfan Syndrome  
   What the disease is and includes the impacts on daily life.
   http://www.orthop.washington.edu/arthritis/types/marfan/01

Polish Marfan Association  
   General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
   http://www.marfan.sprint.pl/

Swedish Marfan Association  
   Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
   http://user.tninet.se/~sda301a/

Marfan Syndrome Forum  
   Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
   http://hometown.aol.com/bjthaler6/myhomepage/

Central Ohio Marfan Support Group  
   Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
   http://www.homestead.com/marfansupport/

The Mystery of Akhenaten: Genetics or Aesthetics?  
   A history of the pharoah along with theories applied to what he may have had, including Marfan's.
   http://www.heptune.com/Marfans.html

Children's Heart Institute: What is Marfan Syndrome?  
   Includes information on heart, skeletal, eye, other, causes, risks, management, and Surgery. Assisted by many graphics and a "tour" to help understand the disease.
   http://www.childrenheartinstitute.org/educate/marfan/marfan.htm

Guide to Marfans Syndrome  
   Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
   http://www.marfanssyndrome.net

Theresa E. Pageau - A Memorial Tribute  
   A tribute to a patient with this disease accompanied by information and links related to donating.
   http://solo23.abac.com/billrobert/Theresa/theresa1.html

A Diary about Marfan's  
   Marfan's patients diary of the diseases events in her life. Includes a list of links.
   http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

Marfan Syndrome: Does Diet Play a Role  
   Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
   http://www.ctds.info/marfan.html

Living With Marfans  
   This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
   http://jrmarfan58.com

Marfan Support and Information  
   Support group in New South Wales, Australia.
   http://www.marfan.net.au

South African Marfan Syndrome Organisation  
   Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
   http://www.marfan.org.za

MFS Type 1 Fibrillin Gene  
   A comprehensive site including major resources listed as well as genetic information.
   http://www3.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=154700

Yahoo! Support Group  
   Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
   http://health.groups.yahoo.com/group/Marfan_Syndrome/

Questions and Answers about Marfan Syndrome  
   From the National Institutes of Health.
   http://www.niams.nih.gov/hi/topics/marfan/marfan.htm

Sports and Marfan Syndrome  
   Article on the risks of sports participation.
   http://www.physsportsmed.com/issues/2001/05_01/salim.htm

Marfan Syndrome  
   Online chapter from The Merck Manual of Medical Information.
   http://www.merck.com/mrkshared/mmanual_home2/sec23/ch279/ch279c.jsp

Marfans Research Foundation  
   Irish charity with information on fund raising activities and the condition.
   http://www.marfansresearchfoundation.ie