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Leukodystrophy (29)

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Call Again Soon Open in a new browser window  
   Directed at making life better for people affected by Leukodystrophy and those who know and love them.
   http://www.joejohnson.net/
United Leukodystrophy Foundation Open in a new browser window  
   Nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in their health.
   http://www.ulf.org/
Aicardi-Goutieres Syndrome Open in a new browser window  
   News, descriptions, contacts, and other information concerning this leukodystrophy.
   http://www.aicardi-goutieres.com
Alexander Disease Open in a new browser window  
   Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/health_and_medical/disorders/alexand_doc.htm
Devoted to Brianna Open in a new browser window  
   Medical experiences and terminology helpful for parents to understand and cope with genetic disorders. One little girl's story, concerning Canavan Leukodystrophy offers help and hope to many.
   http://hometown.aol.com/ydb739094/brianna.html
MCW HealthLink - Alexander Disease Open in a new browser window  
   Information sheet from the Medical College of Wisconsin.
   http://healthlink.mcw.edu/article/921383447.html
Leukodystrophy Open in a new browser window  
   A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
   http://www.ninds.nih.gov/health_and_medical/disorders/leukodys_doc.htm
Undiagnosed Leukodystrophy Open in a new browser window  
   Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.
   http://members.tripod.com/phillipslauren
Family Village / Library / Leukodystrophy Open in a new browser window  
   Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.
   http://www.familyvillage.wisc.edu/lib_leukodystrophy.html
Leukodystrophy Hub Open in a new browser window  
   A brief definition followed by links to research articles, overviews and case reports.
   http://www.projectlinks.org/leukodystrophy
Dylan Samuel Freeman Open in a new browser window  
   Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.
   http://www.dylanfreeman.20m.com

Last Updated: 2004-05-26 00:21:37


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