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Support Groups (53)

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Epilepsy Message Board Open in a new browser window  
   Healthboards.com message board for information and support on epilepsy.
   http://www.healthboards.com/epilepsy/
Epilepsy-l: Epilepsy support group Open in a new browser window  
   An E-mail based support group for people with epilepsy and those who care about and for them.
   http://home.ease.lsoft.com/Archives/Epilepsy-L.html
Weston Super Mare Branch of Epilepsy Action Open in a new browser window  
   Provides information about coping with this disease, seizures and convulsions. Details about the various types, and provides free help and advice through the use of its email and telephone help lines.
   http://www.wsm.inuk.com/epilepsy.htm
Epilepsy Bereaved Open in a new browser window  
   Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy.
   http://dspace.dial.pipex.com/epilepsybereaved/
Epilepsy Support Open in a new browser window  
   Maintained by someone with the disease, this site offers support, advice, and useful links.
   http://www.epilepsysupport.org.uk/
People Incorporated Epilepsy Services Open in a new browser window  
   A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs.
   http://www.orgsites.com/mn/epilepsy
Epilepsy Support Group Eastwood, Sydney Australia Open in a new browser window  
   Offers information, events, issues, links and contact details.
   http://www.users.bigpond.com/epilepsysupportgroup/Default.htm
Yahoo! Groups : KuekidsAustralia Open in a new browser window  
   The Kuekids Australia mailing list is to help parents, families and friends of children using the ketogenic diet who may also have food intolerance problems.
   http://groups.yahoo.com/group/KuekidsAustralia/
Yahoo! Clubs: Epilepsy Support Group Open in a new browser window  
   Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions.
   http://groups.yahoo.com/clubs/epilepsysupportgroup
Cymdeithas Epilepsi Ysbyty Gwynedd Open in a new browser window  
   Epilepsy Support Group in Wales, UK.
   http://www.cymepilepsysbytygwyn.co.uk/
Brain Talk Groups - Neurology Support Groups - Epilepsy Open in a new browser window  
   Epilepsy Support Group sponsored by Massachusetts General Hospital.
   http://neuro-mancer.mgh.harvard.edu/cgi-bin/forumdisplay.cgi?action=topics&forum=Epilepsy&number=33
Epilepsy Action Open in a new browser window  
   Local branches of national organisation providing support, advice and information on living with epilepsy
   http://beehive.thisisessex.co.uk/epilepsy
Epilepsy Surgery Club on Yahoo! Open in a new browser window  
   Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required.
   http://groups.yahoo.com/clubs/epilepsy_surgery
Yahoo! Groups Open in a new browser window  
   Yahoo! Directory: As of the entry date, there are 103 epilepsy groups on Yahoo!
   http://dir.groups.yahoo.com/dir/Health___Wellness/Support/Diseases_and_Conditions/Epilepsy?
Yahoo! Groups : Epilepsy-Kids Open in a new browser window  
   Epilepsy-Kids offers support and information for parents of children diagnosed with any form of epilepsy.
   http://groups.yahoo.com/group/epilepsy-kids/
Yahoo! Groups : Epilepsy_Surgery_Group Open in a new browser window  
   We deal with those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery. Our members are here to help answer any questions you may have. All are welcome, whether you are a surgery candidate or not.
   http://groups.yahoo.com/group/EpilepsySurgeryGroup/
Yahoo! Groups : Epilepsy_Support_And_Education Open in a new browser window  
   We are a growing community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to be epileptic to join.
   http://groups.yahoo.com/group/epilepsysupportandeducation/
Yahoo! Groups : adultswithepilepsy Open in a new browser window  
   This club is for adults (those 18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills.
   http://groups.yahoo.com/group/adultswithepilepsy/
Yahoo! Groups : Rare_Epilepsy_Syndromes Open in a new browser window  
   Rare epilepsy is very difficult on all families involved. This group has been made to help educate and support these families. Rare epilepsy's include. ESES/CSWS, LKS, LGS, Begnign Rolandic, and any other hard to recognize epilepsy.
   http://groups.yahoo.com/group/RareEpilepsySyndromes/
Yahoo! Groups : Epilepsy_Advocates Open in a new browser window  
   Our group is made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy.
   http://groups.yahoo.com/group/Epilepsy_Advocates/
Yahoo! Groups : real_epilepsy Open in a new browser window  
   A group based in Indiana. Epilepsy and seizure disorder resources and support.
   http://groups.yahoo.com/group/real_epilepsy/
Yahoo! Groups : epilepsy Open in a new browser window  
   For people with or know someone with Epilepsy. A place to talk, share stories, and for moral support. All ages welcome.
   http://groups.yahoo.com/group/epilepsy/
Yahoo! Groups : parents-of-kids-with-epilepsy Open in a new browser window  
   This Group is for Parents of Children With Epilepsy.
   http://groups.yahoo.com/group/parents-of-kids-with-epilepsy/
Yahoo! Groups : Christian-Epilepsy-Support Open in a new browser window  
   Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy.
   http://groups.yahoo.com/group/Christian-Epilepsy-Support/
Yahoo! Groups : Dating-and-Married-Life-with-Epilepsy Open in a new browser window  
   Made for people to discuss issues that come up when they are dating and married, including handling different situations, embarrassment, children, and fear.
   http://groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/
Yahoo! Groups : ChristianEpilepsyPrayerGroup Open in a new browser window  
   Are you a Christian living with or caring for someone with epilepsy? ...
   http://groups.yahoo.com/group/ChristianEpilepsyPrayerGroup/
Yahoo! Groups : epilepsychat Open in a new browser window  
   A Place For Chat, Info, Support And To Have Fun
   http://groups.yahoo.com/group/epilepsychat/
Yahoo! Groups : TLE Open in a new browser window  
   Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers.
   http://groups.yahoo.com/group/TLE/
Yahoo! Groups : seizurealertdogs Open in a new browser window  
   This group unites people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. We also Welcome people who want to learn more about these wonderful dogs.
   http://groups.yahoo.com/group/seizurealertdogs/
Yahoo! Groups : epilepsycured Open in a new browser window  
   We are people sharing information on curing / preventing epilepsy - seizures. This is a support group for patients, parents, children, familly members ... anyone and everyone.
   http://groups.yahoo.com/group/epilepsycured/
Yahoo! Groups : ketogenic Open in a new browser window  
   This is a support group for parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.
   http://groups.yahoo.com/group/ketogenic/
Yahoo! Groups : doosesyndrome Open in a new browser window  
   For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood.
   http://groups.yahoo.com/group/doosesyndrome/
Yahoo! Groups : childhoodepilepsy Open in a new browser window  
   This mailing list is intended to support parents and other care-givers of children diagnosed with a form of epilepsy.
   http://groups.yahoo.com/group/childhoodepilepsy/
Yahoo! Groups : epilepsycircle Open in a new browser window  
   This support group is for all who have an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy.
   http://groups.yahoo.com/group/epilepsycircle/
Yahoo! Groups : ToddlerswEpilepsy Open in a new browser window  
   This is a group for parents with toddlers that have Epilepsy. Parents with infants are welcome too.
   http://groups.yahoo.com/group/ToddlerswEpilepsy/
Yahoo! Groups : epilepsysupport4kids Open in a new browser window  
   This group is a support group for kids with epilepsy, kids interetsed in improving their condition by natural means.
   http://groups.yahoo.com/group/epilepsysupport4kids/
Yahoo! Groups : lennox-gsibs Open in a new browser window  
   Lennox Gastaut is a severe form of Epilepsy. This group is for the siblings (brothers & sisters) of those affected by LGS, or a seizure disorder.
   http://groups.yahoo.com/group/lennox-gsibs/
Chrissy & Friends Open in a new browser window  
   Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area.
   http://www.chrissyandfriends.org/
Lafora body disease research talk Open in a new browser window  
   This is a site about lafora body disease it has a message board and a links page.
   http://groups.msn.com/laforabodydiseaseresearchtalk
Doose Syndrome Open in a new browser window  
   This is a group about doose and it has links to other websites but almost all information can be seen by non members of the group.
   http://groups.msn.com/doosesyndrome
Epilepsy Support Group Open in a new browser window  
   Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a pen pal site.
   http://www.geocities.com/epilepsy911
Epilepsy Community Open in a new browser window  
   Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers.
   http://community.healingwell.com/community/?f=23
Yahoo! Groups : wivesofmenwithepilepsy Open in a new browser window  
   It is the hope of this club to address problems, offer support and encouragement to the wife whose husband has epilepsy.
   http://groups.yahoo.com/group/wivesofmenwithepilepsy/
Yahoo! Groups : worldofepilepsy Open in a new browser window  
   For people around the globe who have epilepsy and would like to share their recent or previous experience with epilepsy.
   http://groups.yahoo.com/group/worldofepilepsy/
Doose or Myoclonic-Astatic Epilepsy Open in a new browser window  
   For parents of children who have Doose Syndrome a rare, severe, intractable epilepsy of early childhood. Group provides support for parents along with insight into management of this disorder.
   http://health.groups.yahoo.com/group/doosesyndrome/
Epilepsy Discussion Board Open in a new browser window  
   A forum for people affected by this disorder.
   http://www.debraboard.org/cgi-bin/temp.pl
Epilepsy Support Group Shetland Open in a new browser window  
   Offers an extensive FAQ's and a section talking about the different drugs to control epilepsy.
   http://www.esgs.org.uk
Epilepsy Penarth Open in a new browser window  
   A support group situated in South Wales, open to anyone with epilepsy to join for help and support.
   http://www.epilepsypenarth.ik.com
PokweUK Open in a new browser window  
   A UK based supporting website containing epilepsy information, children's stories and a forum for parents of children with this disorder.
   http://www.pokweuk.org
Australia & NZ Epilepsy Support Group Open in a new browser window  
   Includes information, links and articles relating to epilepsy and related topics.
   http://www.stixdesigns.com.au/epilepsy-support/index.html
Parents of Kids with Epilepsy UK Open in a new browser window  
   A support web site for parent's of children with Epilepsy. Conversations via our mailing lists and web content. This group was designed by parent's for parent's.
   http://www.pokwe.org.uk
The VNS Message Board Open in a new browser window  
   A message board designed for information exchanged related to the Vagus Nerve Stimulator.
   http://s4.invisionfree.com/VNS_Message_Board/index.php

Last Updated: 2004-12-06 11:10:40


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