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Muscular Dystrophies (83)

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Becker Muscular Dystrophy Information Exchange Open in a new browser window  
   Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
   http://www.beckermusculardystrophy.org
DMD Options Open in a new browser window  
   Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
   http://www.dmdoptions.com
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members Open in a new browser window  
   Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
   http://www.urmc.rochester.edu/nihregistry/
NINDS Muscular Dystrophy Information Page Open in a new browser window  
   Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
   http://www.ninds.nih.gov/health_and_medical/disorders/md.htm
MDA Ride For Life Open in a new browser window  
   Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
   http://www.mdarideforlife.org/
Living For Today, Preparing For Tomorrow Open in a new browser window  
   Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
   http://www.livingfortoday.org
Duchennes Open in a new browser window  
   Provides links to medical and non-medical organizations and people with Duchennes problems.
   http://www.ducennes.addr.com/
A Guide for Parents Open in a new browser window  
   This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
   http://www.mda.org.au/publication/guide/mdaguide.html
HealtHub Open in a new browser window  
   A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
   http://www.healthubs.com/dystrophy
FSH Friends Open in a new browser window  
   This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
   http://www.infowest.com/personal/a/alan/FSH/Friends2/
General Practice Notebook - Duchenne muscular dystrophy Open in a new browser window  
   Clinically-oriented information.
   http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=-885719035
DoctorBach.com Open in a new browser window  
   This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
   http://www.doctorbach.com/
Muscular Dystrophy Campaign Open in a new browser window  
   Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
   http://www.see-search.com/musculardystrophycampaign.htm
Muscular Dystrophy Community Open in a new browser window  
   Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
   http://community.healingwell.com/community/?f=43
DMD Information and Resources for Teachers Open in a new browser window  
   Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
   http://www.uni-potsdam.de/u/germanistik/ls_dgs/teachers.html
Duchenne/Becker Muscular Dystrophy Open in a new browser window  
   Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
   http://www.ygyh.org/dmd/
FSH-MD Support Group Open in a new browser window  
   Provides support for those with Facio Scapulo Humeral and their carers.
   http://www.fsh-group.org/index2.html
DMD Pioneers Open in a new browser window  
   Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
   http://www.dmdpioneers.org/
DMD Information Open in a new browser window  
   Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
   http://www.angelfire.com/band/teja/index_dmd.html

Last Updated: 2004-12-31 22:06:29


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