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Spinal Muscular Atrophy (18)

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FightSMA Open in a new browser window  
   Web site promoting public awareness for spinal muscular atrophy.
   http://www.fightsma.com
SMA Angels Support Site Open in a new browser window  
   A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
   http://www.smaangels.com
Families of SMA (Spinal Muscular Atrophy) Open in a new browser window  
   International support group and resource center for this disease, includes current research.
   http://www.fsma.org
SMA2 Ian Paul Open in a new browser window  
   I am two years old and I have SMA2.
   http://www.geocities.com/ianpaul2
Ilsa's SMA Resources Open in a new browser window  
   A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
   http://www.smaangel.com
GeneClinics SMA Information Page Open in a new browser window  
   Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
   http://www.geneclinics.org/profiles/sma/index.html
Washington University of St. Louis: Neuromuscular Open in a new browser window  
   Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
   http://www.neuro.wustl.edu/neuromuscular/synmot.html
Spinal Muscular Atrophy Open in a new browser window  
   This site contains a collection of material pertaining to SMA. I have been searching facts on SMA ever since our son was diagnosed with the disease in 1994.
   http://members.rogers.com/mwcunning/sma.htm
Tori's Buddies Open in a new browser window  
   Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
   http://www.fightsma.ca/
Theo's Story with SMA Open in a new browser window  
   A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
   http://www.mysunrise.ch/users/af.mast/
Families of Spinal Muscular Atrophy Canada Open in a new browser window  
   Canadian charity supports research into a cure for SMA.
   http://www.fsma.org/canada/
Elizabeth's Page Open in a new browser window  
   Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
   http://www.our-sma-angels.com/elizabeth/
Emily's Walk for Life Open in a new browser window  
   Information about an annual walk to raise money to find a cure for spinal muscular atrophy. Learn about SMA and read Emily's story.
   http://www.emilyswalkforlife.com
Kennedy�s Disease Information Page Open in a new browser window  
   Information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
   http://www.ninds.nih.gov/disorders/kennedys/kennedys.htm
Our SMA Angels Open in a new browser window  
   Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
   http://www.our-sma-angels.com
Spinal Muscular Atrophy Foundation Open in a new browser window  
   Information on SMA, and the latest updates in research, treatment and funding.
   http://www.smafoundation.org
The Sean W. Venezia Foundation Open in a new browser window  
   Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
   http://www.smafund.org
SMA Support Inc. Open in a new browser window  
   A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
   http://www.smasupport.com

Last Updated: 2004-12-01 18:57:04


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