Refsum Disease
   Information sheet on this disease as to what it is, the symptoms, treatment and research being done.
   http://www.ninds.nih.gov/health_and_medical/disorders/refsum_doc.htm

Refsums Disease
   Two articles about this disease, clinical description, inheritance, treatment and related diseases and syndromes.
   http://www.srpf.a.se/forsk/refsum.html

Yahoo! Group - Refsum Disease Support Network
   E-mail based discussion group for people with this disorder and their families for sharing experiences, coping strategies and dietary tips.
   http://groups.yahoo.com/group/refsums_discussion/