National Tay-Sachs and Allied Diseases Association
An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
http://www.ntsad.org/
Tay-Sachs Disease
Information sheet on this disease addressing what it is, treatment and prognosis.
http://www.ninds.nih.gov/health_and_medical/disorders/taysachs_doc.htm